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New Dance for Parkinson's Spring Session begins on April 18, 2013

On April 18, 2013 a new dance for pd session is starting. The program is funded by Bodywise Dance.
Thursdays between 2pm - 3pm
Iona Senior Center
4125 Albemarle St., NW
Washington DC 20016
For more information please contact:
Margot Greenlee at  202-895-9407 or email margot@bodywisedance.com
These sessions are free to parkinson patients, caregivers and to their family members and friends.
For more information click here.

 

• Jersey Mike's Subs of Fairfax raises $2,400 for PFNCA Programs!

PFNCA & Jersey Mikes Fairfax staff

Franchise owner Lori Kollar held a grand opening and free sub fundraiser from Wednesday, July 11 to Sunday, July 15 to support the Parkinson Foundation of the National Capital Area (PFNCA).

The new restaurant, located at 12703 Shoppes Lane, circulated 15,000 coupons throughout the community, offering a free regular sub for a minimum $1 contribution to PFNCA.

"It was always my dream to open a business of my own and Jersey Mike's seemed to be the perfect fit,"said Kollar. "Everything from the freshness of our product to the atmosphere of the stores attracted me as a business owner.  The culture of giving at Jersey Mike's has allowed me the opportunity to make a difference in my community and for our grand opening fundraiser I have partnered with the Parkinson Foundation of the National Capital Area. Giving back to the Parkinson Foundation of the National Capital Area is a very rewarding feeling for me since my father was diagnosed with Parkinson's disease.  Knowing the money we raise will benefit people in the local area is so important to me."

Thank you Lori!

• "Global Telemedicine Clinic for Parkinson’s Disease"

Johns Hopkins Neurology and Neurosurgery Department is starting a free global telemedicine clinic to improve access for patients with Parkinson's disease.
They will provide free one-time consultations via web-based videoconferencing with a Johns Hopkins specialist to any patient wherever he or she lives.
• Patients only need access to a computer and high‐speed internet. They can help provide web camera capabilities.
• Patients are eligible to participate if they live in the following states: California, Delaware, Florida, Maryland, and New York. International patients are also welcome.

More information, please click here

• Voice Study by Parkinson's Voice Initiative

"Whether you are healthy or living with Parkinson’s, help provide the voice information needed to build a system to screen for and monitor the symptoms of this debilitating disease. All you need to do: make a low-cost, anonymous, three-minute phone call."

More information, please click here or go to http://www.parkinsonsvoice.org

"Keeping Parkinson's Disease a Secret" by Kate Yandell
To read the rest of the story, please click here

• Governor McDonnell has just signed a proclamation declaring April is Parkinson's Awareness month in Virginia! Please click here to view the certificate.

• "Singing allows people with Parkinson's Disease to exercise their vocal cords" by Phillis Richman published on Washington Post on April 3, 2012

To read the rest of the story, please click here

• "Having Parkinson’s disease is nothing to celebrate" by Phyllis Richman published on Washington Post on May 3, 2011.

To read the rest of the story, please click here

• Exploring group check ups for diabetes, Parkinson's

Doctors interested in finding new ways to better serve patients amid diminished numbers of primary physicians are wondering if a little bigger might be better.

To read more, please click here

• University of Maryland Study Finds Benefit of low in intensity exercise to improve walking for people with Parkinson's disease.

To read more, please click here

Link to Website for Medication Watches Raffled at Symposium

We have been getting many requests for more information about the medication watches that were featured at the Symposium raffle.  The six-alarm reminder watch is from the company Almeda Time, and the alarms can notify you either by sound or vibration.  Here is their website:

http://www.almedatime.com

Gene that causes Parkinson's disease identified

Travel Tips for Individuals with Parkinson's disease

New Network Aids People with Parkinson's

Cycling for Freezing of Gait

Despite PD, Senior Athlete Stays in the Lineup

On Not Driving with Parkinson's by Glenn Roberts

 

Parkinson's disease Work-Related Disability Assessment Form

The Parkinson's Action Network (PAN) is pleased to announce the Parkinson's disease Work-Related Disability Assessment Form. The form is available for download here.

It has been brought to PAN's attention that people with Parkinson's may experience trouble seeking Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI) benefits due to inadequate documentation of symptoms in their medical record. This form may be helpful to Social Security reviewers during the SSDI/SSI application process. It was created with the hope that it will be used by both clinicians and patients as a way to document and track a person's symptoms with particular focus on the symptoms that are most likely to interfere with one's ability to work.

The Parkinson's disease Work-Related Disability Assessment form is designed to supplement a patient's medical record and is not a Social Security Administration form or application.