September 13, 2015, Nationals Park, Washington, D.C.
Gates open at 8:30 a.m.
Join us at Nationals Park - home of the Washington Nationals - for an inspirational walk to support those with Parkinson's and to let them know that they do not face this relentless disease alone. Together we will Walk Off Parkinson's.
Educational Presentation, April 22nd 1pm
Dr. Linda Sigmund, Board Member of Parkinson Foundation of the National
Capital Area, will be presenting an overview on Parkinson's Disease for
healthcare providers and caregivers.
The event will be hosted at INOVA Loudoun Hospital in Lansdowne.
Conference rooms A and B
44045 Riverside Pkwy, Leesburg, VA 20176
Click here for more information
• "Global Telemedicine Clinic for Parkinson’s Disease"
Johns Hopkins Neurology and Neurosurgery Department is starting a free global telemedicine clinic to improve access for patients with Parkinson's disease.
They will provide free one-time consultations via web-based videoconferencing with a Johns Hopkins specialist to any patient wherever he or she lives.
• Patients only need access to a computer and high‐speed internet. They can help provide web camera capabilities.
• Patients are eligible to participate if they live in the following states: California, Delaware, Florida, Maryland, and New York. International patients are also welcome.
• Voice Study by Parkinson's Voice Initiative
"Whether you are healthy or living with Parkinson’s, help provide the voice information needed to build a system to screen for and monitor the symptoms of this debilitating disease. All you need to do: make a low-cost, anonymous, three-minute phone call."
• "Keeping Parkinson's Disease a Secret" by Kate Yandell
To read the rest of the story, please click here
• Governor McDonnell has just signed a proclamation declaring April is Parkinson's Awareness month in Virginia! Please click here to view the certificate.
• "Singing allows people with Parkinson's Disease to exercise their vocal cords" by Phillis Richman published on Washington Post on April 3, 2012
• "Having Parkinson’s disease is nothing to celebrate" by Phyllis Richman published on Washington Post on May 3, 2011.
• Exploring group check ups for diabetes, Parkinson's
Doctors interested in finding new ways to better serve patients amid diminished numbers of primary physicians are wondering if a little bigger might be better.
• University of Maryland Study Finds Benefit of low in intensity exercise to improve walking for people with Parkinson's disease.
Link to Website for Medication Watches Raffled at Symposium
We have been getting many requests for more information about the medication watches that were featured at the Symposium raffle. The six-alarm reminder watch is from the company Almeda Time, and the alarms can notify you either by sound or vibration. Here is their website:
Parkinson's disease Work-Related Disability Assessment Form
The Parkinson's Action Network (PAN) is pleased to announce the Parkinson's disease Work-Related Disability Assessment Form. The form is available for download here.
It has been brought to PAN's attention that people with Parkinson's may experience trouble seeking Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI) benefits due to inadequate documentation of symptoms in their medical record. This form may be helpful to Social Security reviewers during the SSDI/SSI application process. It was created with the hope that it will be used by both clinicians and patients as a way to document and track a person's symptoms with particular focus on the symptoms that are most likely to interfere with one's ability to work.
The Parkinson's disease Work-Related Disability Assessment form is designed to supplement a patient's medical record and is not a Social Security Administration form or application.